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  "Conditions in society which are not defined as a problem and for which alternatives are never proposed, never become policy issues. Government does nothing and conditions remain the same."
 T.R.Dye, Policy Analyst
(From the book "Understanding Public Policy"
 

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Chronic Illnesses

 

 

 
 

     Suddenly, your life changes in an instant.  You are just told by your Doctor that you have a life threatening disease.  He tells you not to worry, that you still have many options available to you.

     Your life just stopped, you still hear the words but your mind is racing.  You are thinking about what you had, what you will lose, what will happen.  Everything is changed.  The day that started off like any other day, is now different.  While the Doctor tells you not to worry, that we can bet this.  Your mind is telling you that you are going to die.

     The Doctor tells you about the latest treatment options, that we can beat this and not to worry.  You begin the treatment, you are believing now that there is a chance.  The treatment continues, its hard, it takes its toll both on your body and your head.  Finally, you believe that there is light at the end of the tunnel and you are going to beat this.  Then that light suddenly turns into a locomotive headed right straight for you.

     This is the roller coaster world that you have now entered.  But the bottom line to all of this is that you are still the same person you were one year, two years ago.  Just everything has changed-but you are still the same person.  Just like when you throw confetti into the air (those pieces are you), there are still the same pieces when they fall, just arranged differently when the land on the ground.

     While many Doctors believe that they are God, unlike God-they cannot foretell the future.  They may be able to tell you what MAY happen concerning an illness, they cannot say of any certainty that this WILL occur exactly as they say.

     Do miracles, yes.  But the reason they are called miracles is that they do not always occur.  Sometimes, God's answer is NO.

     Nothing is promised to anyone in life.  Whatever cards you are dealt, will be the ones that you have to pay with.  No re-deals, no re-shuffle.  You play with what you have.

     Are you still the same person, YES.  You still have the same talents, skills that you had two days ago.  You are that confetti waiting to fall to the ground. 

    

From his HIV diagnosis in 1985 until his death in April of 2009, Cass Mann was one of the world's longest-term HIV-positive survivors. He founded Positively Healthy, the UK's only HIV/AIDS charity staffed exclusively by openly gay men, which provided HIV services including education, support, and peer counselling. These videos now archive his wisdom and insight for future generations. Here he talks about how people sometimes feel suicidal when they think they're about to test HIV positive or have tested HIV positive, and why suicide makes no sense. A person who is diagnosed HIV positive today can with intelligence expect to live a full lifespan with a good quality of life so long as they follow medical advice and take care of their health and nutrition. People who commit suicide after an HIV positive diagnosis probably already had other serious issues in their life other than HIV. There were many gay men with AIDS who committed suicide during the "first wave" of AIDS in the 1980s. Anyone who contemplates suicide today after an HIV diagnosis hasn't examined all their options intelligently and coherently. There are various forms of suicide. One is when you take your own life by a specific act of commission. But those forms are rarer than "long-term suicide," a suicide that occurs over months or years that happens when you stop caring whether you live or die, and you take on behaviors that will result in your death but over a longer term. They're still acts of commission, but they're less dramatic. They take longer, but the result is the same, and you are still responsible for your suicide. That's a very painful suicide because it takes so much longer. A lot of the gay men Cass has known who committed suicide lacked a network or support system to catch them when they needed it. No one knows they're alive, so no one notices when they die, and that's dangerous. Gay men should get a support network in place at the outset so that they have it when they need it. You want to have people in place who you can share concerns with if you feel depressed, suicidal etc. Drugs, depression, and isolation all increase the risk of suicide. People have "deathstyles" that replace "lifestyles." People suffering from depression or suicidal feelings need immediate treatment. For more information, visit http://www.posh-uk.org.uk/ and http://www.AIDSvideos.org/. This video is freely downloadable from http://www.archive.org/details/ifITes... . [Do you want to help prevent the spread of HIV/AIDS? Are you fluent in a language other than English? Then volunteer to translate this video into another language! Click http://AIDSvideos.org/translate.shtml to learn how you can help!!!]

 

We are here if you need us.

 

    

Listed below are several other reports that you can view

Document Name & link to article

Description

file size if pdf

Cambodia-suicide: AIDS-ridden Cambodian torches himself in city center

A man who feared he was infected with AIDS after a local hospital refused to buy his blood set himself ablaze in the center of the Cambodian capital Thursday, police and witnesses said.

 

Combating Lesbian and Gay Youth Suicide and HIV/AIDS Transmission Rates: An Examination of Possible Education Strategies in Western Australian High Schools in Light of Prevailing State Statutes

Research concerned with the problems facing lesbian and gay youth indicates two re-occurring elements that require immediate attention on the part of educators and social activists. The first is an alarming suicide rate amongst lesbian and gay adolescents.[2] The second is what has been referred to as a "second wave" of HIV/AIDS transmission amongst young gay men between the ages of 14 and 19.

 

Depression and suicidality in HIV/AIDS in China

This pilot study examined rates of major depression and suicidality and their associations with daily functioning in HIV infected (HIV+) and uninfected (HIV−) persons in China.

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HIV Seroprevalence Among Suicide Victims in New York City, 1991–1993

 

In 1985 we conducted a study in New York City to determine the risk of suicide among persons with AIDS (1). At the time there were 3,390 known adult cases of AIDS in New York City that had been diagnosed since 1981; more than 90% of those affected were men, and half were white. The HIV serotest had just been devised. We found 12 instances of suicide among persons with AIDS, all of whom were men, aged 22 to 56 years, and most of whom were white—representing a suicide risk 36 times that of men in the general city population of similar age. Subsequent studies also have reported high rates of suicide among persons with AIDS

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'HIV stigma' drives India suicide

Investigations suggested Santosh Baniya feared being ostracised once it became public knowledge that both his parents, who were vegetable sellers, were HIV positive, police said.

 

HIV/AIDS and challenges of euthanasia, suicide

Although in the past it has been emphasised that human life must be allowed to continue until a natural end, HIV/AIDS has, on one hand posed challenges including a deliberate call to the effect that euthanasia can be allowed to enable critically ill AIDS patients to die amicably with less pain and dignity, according to Godffrey Ijumba\'s Training Manual for Mass Media Practitioners on HIV/AIDS.

 

HIV-positive Cambodian woman commits suicide

A Cambodian woman committed suicide after learning she was HIV-positive and more than 30 men who had slept with her may also have contracted the virus, police said Friday.

 

How HIV/AIDS patients dare to suicide?

Recently released report of accidental deaths and suicides in India shows alarming rise in suicides by hiv/aids patients. Awareness campaign have not succeeded in changing social mindsets

 

KENYA: Boy's suicide reveals gaps in HIV education

The recent suicide of a secondary school student in Kenya's North Eastern Province after he was diagnosed as HIV positive has highlighted the shortage of qualified counsellors in the region, and the urgent need to address the misinformation and stigma attached to the virus.

 

Rational Suicide and HIV Disease

Suicidal inclinations among AIDS patients are extremely common as the patients constantly reevaluate the quality of their lives. One recent study indicates that people infected with HIV may be up to 40 times more likely to consider suicide than members of the general population, although other surveys have reported levels of suicide risk among AIDS patients at similar levels as those for the general public. Experts say factors that may influence the suicide risk for HIV-infected people include the stage of the disease and characteristics of groups at high risk of contracting AIDS.

 

Saving Lives: Understanding Depression and Suicide

Power Point Presentation

957 kb

South Africa’s Aids apartheid

A new and deadly apartheid threatens South Africa’s freedom: five million of its people have contracted the Aids virus and 360,000 more are infected each year. The public health sector, only resort of the poor, does not supply antiretrovirals. But HIV positive people, fighting for their own lives, are also encouraging the nation to resist all forms of discrimination.

 

Suicidal ideation and HIV testing

Persons who are told they are infected with HIV (human immunodeficiency virus) sometimes become suicidal. Two studies that reviewed death certificates of men with AIDS (acquired immunodeficiency syndrome) found the rate of suicide was greatly elevated. One of these studies found that men who had AIDS had 36 times the rate of suicide of men who did not.

 

Suicidality in Patients With HIV/AIDS

HIV infection can lead to a confluence of severe medical, psychological, and social stresses that can result in alienation from family and friends, loss of job and income, and chronic physical pain. While many people who are infected with HIV think of suicide at some time, only a small minority of HIV-infected persons commit suicide. A great many people with HIV infection lead fulfilling lives (sometimes even more fulfilling after the HIV diagnosis); nevertheless, the potential for suicide in this population should be recognized.

 

Suicide and HIV/AIDS in Transkei, South Africa

HIV/AIDS has devastating effects in terms of personal and family suffering. The disease is highly stigmatised and there are many instances of discrimination against sufferers and their families. This could lead to suicide, both in infected as well as affected individuals. The literature lacks clarity and the subject is traditionally problematic to research as it is attached with ethical issues. This study has tried to correlate between the growing number of suicidal deaths and HIV infection in the region.

 

SUICIDE ATTEMPTS AMONG PUERTO RICAN MEN AND WOMEN WITH HIV/AIDS: A STUDY OF PREVALENCE AND RISK FACTORS

Epidemiologic studies in the United States have estimated that 1.1%–4.3% of the general population attempt suicide at some time in their lives, but limited information is available on suicidal attempts within the HIV-positive population after the introduction of effective antiretroviral therapy. In this study, we evaluate the profile and trends of attempted suicide in a sample of HIV patients in Bayamo´n, Puerto Rico.

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Suicide Rate Declines in HIV-Positive Patients, But Remains High

Despite a significant decrease in suicide among HIV-infected individuals since 1996, the suicide rate in these patients remains significantly higher than in the general population, indicating a need for better suicide prevention strategies and improved mental health screening and treatment in these vulnerable individuals.

 

Suicide Risk and Pain in Cancer and AIDS Patients

Jerzy Kosinski, the Polish novelist and holocaust survivor, committed suicide in May 1991. Like other individuals suffering with chronic medical illnesses, he chose suicide as a means of controlling the course of his disease and the circumstances of his death. ``I am not a suicide freak, but I want to be free,'' Kosinski told an interviewer in 1979. ``If I ever have an accident or a terminal disease that would affect my mind or body, I will end it.''

 

Understanding Depression And Suicide In Our Communities

Power Point Presentation

957 kb

Understanding Depression And Suicide In Our Communities – A Training for Clergy and Church Leaders

Power Point Presentation

734 kb

Understanding Depression And Suicide In The Elderly

Power Point Presentation

711 kb

Understanding Depression And Suicide In Young People – A Training For School Personnel

Power Point Presentation

621 kb

Understanding Depression And Suicide In Our Communities – A Training for Clergy and Church Leaders

Power Point Presentation

673 kb

Understanding Depression And Suicide In Young People – A Training For Power Point Presentation 573 kb

Understanding Mental Illness And Responding to Suicide In Criminal Justice Settings

 

Power Point Presentation

496 kb

Zambia: Women’s suicide reminder of HIV stigma

This story gave an elaborate and compassionate account of how 41-year-old Linda Kabengele committed suicide after her community continually stigmatised her due to her HIV-status. Her charred body was found still smoldering, as she lay dead near a tavern. Next to her was a photograph of her child, her handbag and some anti-retrovirals. There were tut tuts followed by sympathetic noises from the public.